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I thought I'd should communicate with everyone and let you know I haven't fallen off the edge of the earth.

I was not present on the hill much this year and haven't been out and about much either.
I'll shorten this by quite a bit .

My little girl Addie has not been well. Last November around her 6th birthday she complained of severe joint pain. Dr's at Primary Children's said it was most likely JRA Juvenile Rheumatoid Arthritis. After several weeks that condition resolved itself without any treatment.

But….they had been doing blood tests on a weekly basis. In addition to watching for other things they noticed some odd red and white cell counts.

Case then was transferred to Oncologist/Hematologist. They did a bone marrow biopsy/aspiration (where they take a sample of the hip bone marrow.)

Good news is that it was not leukemia. Bad news was that it is Aplastic Anemia 2/100,000,000 kids get this. A failure of the bone marrow to produce enough blood cells, red, white or platelets.

10 days ago she finished her first course of drug therapy, hopefully her only course too. 4 days of treatment meant to suppress her immune system to allow the bone marrow to do its job. She not been able to go to school for a while because of her compromised immune system. Between that, and her 2-3 times a week blood draws, tests, transfusions and 4 times a day medications I have stayed home with her and as such been out of service.

This has been going on more or less since November but has increased dramatically in the last 2 months.

Anyway, we hope she can get back to school after spring break if her levels are up. She is in great spirits and actually has lots of energy but gets tired easily, and bruises easily and needs to wear a mask while around groups of people.

We are hoping for remission in the next few to several months and that she will just grow out of it.

So.....that is the reason I've been somewhat ....absent.

Please Remember little Adelaide (Addie) in your prayers.
Thanks,
Clark Aposhian

 

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Your little angel will definately be in our prayers. Please let us know if you need anything else.
 

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I am very sorry to hear about your daughter. Yes, we have missed you around here and hope that things will improve and allow your presence; however, your family is the most important thing and should definitely take priority. Give our regards to your brave little daughter, we all hope for a speedy recovery.
 
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That is a lottery no one wants to win.
Best wishes to you and your family. I am O+ if you start looking for donors I'll get tested.
 

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Let us know if there is anything we can do. Having a :fever: child is no fun at all.
 

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Yes Clark she is definatly in our prayers!! We will pray for your whole family as well. I am also willing to be tested too. Just let us know if you need anything we are all behind you and willing to help where we can!
 

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I'm right there with everyone else wishing the best for your little girl and your family. If I can do ANYTHING to help within my power, just say the word.
 

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I'm sorry to hear that but I'm glad she is doing better everyday. We have her in our thoughs, believe me.

Sorry to hear that there is another parental thing on your plate.

Hope to see you soon.

TJ
 

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Best of luck to your daughter Clark. Primary Children's Hospital works miracles. They saved my daughter when she was an infant.

By the way, I thoroughly enjoyed the class last night. It was well worth the drive from Lehi.

Take Care,

NHS
 

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Best wishes to your little girl and your family,hang in there.I think there are a lot of good people out there praying for you, my wife and I will be.
 

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Best wishes to you and your family! You will be in my prayers. As so many others have said, let us know if we can do anything to be of help.
 

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Clark, I'm sorry to hear that about your child. My son has asthma and it just breaks your hear when your kids aren't well. Your daughter and family are in my prayers. Be safe and let me know if I can help you in ANY WAY. Be safe
 

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Best of luck Clark, with your child!!! Thats a tough one, but y'all seem to have the right attitude. Your in a great medical place for such things though. Primary childrens, Shriners, and UoU all have great orthopedic and medical doctors, I've been through them all and you are in good hands. Your family and child will be in our thoughts. Best of Luck and take care!!!
 

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I'm very sorry that Addie is going through that, Clark. She and your whole family are in our prayers too. :angel:
I know what it is like to have children with very serious, debilitating illnesses.
We struggle with that every day too. Some days are better than others.

It is my sincere prayer that she will fully recover.
We hope to have you back with us on a regular basis, too.
We're a bit lost without you.
 

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My prayers go with your little one and your whole family.
 

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Best of luck to all of you. Addie & your family will be in my prayers.
 

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Clark you wish your girl well with a speedy & complete recovery! Continue to be there for her & we will continue to pray for her recovery. God Bless!
 
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